Lucy's Neck

Just over a week ago Lucy woke up with a painful neck. I gave her painkillers and it seemed to get better, but she looked different, kind of mis-aligned.
The next day she wasn't too bad but by bedtime was complaining that her neck was hurting again. She was still unwell the next day which was a Sunday so on Monday morning I took her to see the Dr. He said she may have an infection but she couldn't open her mouth far enough for him to see. He gave us anti-biotics and told us to keep giving her painkillers.
The next day we had a day out planned. I thought that it would take her mind off it and she was looking a bit better. As the day wore on I could see her getting into more and more pain. She was trying to join in with the other children, she wanted to have fun but the pain was becoming unbearable. So we took her to A&E. They told us they thought she had Torticollis or wry neck and because of her hypermobility it was taking it's time to heal. They gave us some Diazapam, a muscle relaxant and told us to keep up the painkillers. The next day she seemed much better and I thought she'd turned a corner. As the day wore on her neck became painful again but her next dose of Diazapam made her sleepy.
We had an appointment at the hospital for a review the next day, but Lucy was worse again. She was in a lot of pain and the consultant was really concerned. Also worrying was that she had come out in a blood rash around her throat. Of course the worry then was that it was meningitis so she was given a CT scan. Thankfully her brain was clear but they couldn't do her neck at the same time and told us to go back the next day for an MRI scan.
The next morning the hospital had decided that Lucy wouldn't be able to cope with an MRI scan so booked her in for a neck CT scan on Monday.
Today, Lucy has been in a lot of pain despite the Diazapam and painkillers. She's not eating and can barely move her jaw. We are worried sick about her. Surely she should be showing some improvement by now. We have been hopeful so far because she hasn't had a temperature or been sick, but now she's complaining of headache too.

I hope and pray that she makes a recovery soon. I'm scared of what the hospital may find on Monday, but I'm staying positive that it will be something easily remedied once they know what to do. I hate seeing her suffer, but she's not complaining loudly, just constantly wincing. If you ask if she's ok she'll say yes, but you only have to look at her to see how much pain she is in. My poor little girl.