Monday, 12 August 2013

Lucy's neck part two.

It's now been 11 days since Lucy started complaining about her neck, however, after checking my diary I can see she also complained a couple of days sooner but it appeared to be ok the next day, so that's 13 days since it started.
Today we went to the hospital for a CT scan on her neck. We were left waiting two hours as they had a couple of emergency cases brought in.
Lucy was really unwell today, the worst I've seen her so far, she was also feeling sick. She slept for an hour while we were waiting.
During the scan she was really brave and didn't move an inch even though it hurts her to lie flat on her back.

After the scan we went to A&E as we had been told to wait for the results of the scan. We waited 2 hours and then were called into a cubicle where we waited a further 20 minutes until the Dr arrived. She hadn't got a clue what was going on. The results had not been sent through because they had not been marked as urgent. It was impossible to get them now until morning (it was now 7.30pm) So we'd waited all that time for nothing.

The Dr asked what we'd been told and when we said Torticollis she said, 'oh, you do know that that can take at least a week to get better?' 'Yes, I said, it's been 11 days now and she's getting worse not better'
I told her I'd run out of Diazepam and she said she'd get us some more. She went away and came back 10 minutes later to tell us she couldn't get the Diazepam and gave us a prescription. The pharmacy was closed so we couldn't get it until morning anyway. She told us that they'd ring us in the morning with the results from the scan and that she'd made an appointment for Lucy on Thursday.
So we still have no answers and now we have to see our little girl suffer for 3 more days before seeing another Dr. I told her I wasn't happy.
She then told us to ring tomorrow around lunch time for the results of the scan....uh, didnt' she just tell us they'd ring us in the morning?
Then on the way out she told us to go to reception and make an appointment for Thursday. She had previously told us that she'd made an appointment.
At the last minute, like it was an after thought, she said, 'don't worry if it was anything serious the sonographer would have told us, I'm sure he would have looked over the scan results'
Did I believe her? Did I hell!
I told her, it might not be anything serious, but my 7 yr old little girl is in agony and has been for 11 days and no-one seems to be doing anything about it. It's ok taking her for scans, but what's the point if you're not actually doing anything to help ease her pain?
I was told they would talk it through with me on Thursday.
I'm not waiting until Thursday.When they call, or I call tomorrow (who knows) I'm going to tell them whatever the results I'm bringing her back in for TREATMENT....maybe someone there has heard of the word??
I really don't want to see my little girl suffer anymore.


Friday, 9 August 2013

Lucy's Neck

Just over a week ago Lucy woke up with a painful neck. I gave her painkillers and it seemed to get better, but she looked different, kind of mis-aligned.
The next day she wasn't too bad but by bedtime was complaining that her neck was hurting again. She was still unwell the next day which was a Sunday so on Monday morning I took her to see the Dr. He said she may have an infection but she couldn't open her mouth far enough for him to see. He gave us anti-biotics and told us to keep giving her painkillers.
The next day we had a day out planned. I thought that it would take her mind off it and she was looking a bit better. As the day wore on I could see her getting into more and more pain. She was trying to join in with the other children, she wanted to have fun but the pain was becoming unbearable. So we took her to A&E. They told us they thought she had Torticollis or wry neck and because of her hypermobility it was taking it's time to heal. They gave us some Diazapam, a muscle relaxant and told us to keep up the painkillers. The next day she seemed much better and I thought she'd turned a corner. As the day wore on her neck became painful again but her next dose of Diazapam made her sleepy.
We had an appointment at the hospital for a review the next day, but Lucy was worse again. She was in a lot of pain and the consultant was really concerned. Also worrying was that she had come out in a blood rash around her throat. Of course the worry then was that it was meningitis so she was given a CT scan. Thankfully her brain was clear but they couldn't do her neck at the same time and told us to go back the next day for an MRI scan.
The next morning the hospital had decided that Lucy wouldn't be able to cope with an MRI scan so booked her in for a neck CT scan on Monday.
Today, Lucy has been in a lot of pain despite the Diazapam and painkillers. She's not eating and can barely move her jaw. We are worried sick about her. Surely she should be showing some improvement by now. We have been hopeful so far because she hasn't had a temperature or been sick, but now she's complaining of headache too.

I hope and pray that she makes a recovery soon. I'm scared of what the hospital may find on Monday, but I'm staying positive that it will be something easily remedied once they know what to do. I hate seeing her suffer, but she's not complaining loudly, just constantly wincing. If you ask if she's ok she'll say yes, but you only have to look at her to see how much pain she is in. My poor little girl.


Monday, 29 July 2013

It goes like this!

I say: I don't like the look of J's rash, it's spreading
He says: it's fleas, he's always rolling around on that rug
I say: but only one cat comes in here and she hates the rug
He says: it doesn't matter, the fleas get everywhere.
I say: How come no-one else has been bitten
He says: I have
I say: but only you two?
He says: fleas are like that, they don't bite everyone.


I've been bitten before?

I say: I still don't think it's flea bites, it doesn't look like them
He says: well take him to the Dr then
I say: He'll probably just say it's a heat or allergy rash
He says: You won't take him, you can't be bothered, you just moan about it but don't do anything.
I say: I'll make an appointment
He says: And get the cat a new flea collar
I say: I will, but I'm sure it's not fleas
He says: It is that's why we are both bitten
I say: no-one else is, but you and J are always around your mum's and she has a dog, maybe that's were the bites are coming from.
He says: no, it's not mum's dog, she doesn't have fleas.
I say: strange that it's only you two though and you both are always around your mum's dog

He says: It doesn't look like flea bites anyway, you should take him to the Dr

I took him to the Dr who said.....it's a heat rash!


Monday, 15 July 2013

Heatwave

I'm not a sun lover, never have been. I do like summer and warm sunny days, but hot blistering days, no thanks. Why do you think I don't want to go abroad? Well I do, but not blistering hot places. I'm not complaining though (no really) we don't get much of a summer here so let it shine and I'll swelter quietly. 

In other news, I didn't get the problem with the rent sorted but I did find the money to pay the bill which I still say I don't owe. The 28 days is up this Friday so hopefully I'll have a result by then, and maybe some money back. The good news is, the house is still ours. We have to wait a little longer for it to be finished built though, and it will probably be pushed back even further, these things are never rushed. We got to visit often just to see how it's getting along. We've walked around finding the routes to the local schools and shops. Next week we get to take the kids with us too.

Today we should have spent at Center Parcs Elvedon, but as we were supposed to have been moving this week I declined the invite. Also, even though we were promised our travelling expenses reimbursed they were pretty steep and with having to find all that money for the rent we don't owe I just couldn't afford to pay them up front. So I've been sulking to myself all day. Such a lovely day for trying out a new pool too :(

Now it's the last week at school for the kids and most probably the last week ever which is quite sad. I do like their school and teachers. I will also miss my school run buddy. It's like the end of an era :(

I'm both terrified and excited about moving though. I'll be glad when it's done and we can enjoy our new home. The weeks before are going to be hell though!


Wednesday, 26 June 2013

New Home

Last week I was feeling pretty low. It wasn't really post holiday blues because on the way home I received and invitation to go to another Center Parcs, and then on the evening I found out that I'd won a holiday to Blackpool! Plenty of treats for us this year then.

I guess the holiday followed immediately by our weekend in London and trip to Legoland did take it's toll. We were all very tired. Ok, absolutely knackered. And it affected some of us more than others resulting in someone's very bad and selfish mood which put a damper on things for me.

Then back home there was another incident which upset me, but has since been resolved and I shouldn't have been so hasty to judge.

So I was feeling low already before I decided to take a look and see if there were any homes available for us this week on the housing transfer website. I logged on and there in big red letters were the words, 'suspended from bidding' I was so upset. I tried calling, all day long, but the line was permanently engaged. I whipped off an e-mail and got an automated reply saying that my e-mail would be read within 28 days!!! I was bloody furious. I had a bit of a tantrum and announced (well, I say announced, I was the only person listening) that I was no longer wanting to move house, I'd given up and was going to stay here until I died.

The next morning I went to the cemetery to talk to mum. I had a lot to say and sometimes I feel she's the only person I can really talk to even though she's not here any more. I knew she would have said all the right things if she could.

On returning home I found an e-mail telling me to ring a number urgently and that it was to do with my  housing transfer. The person I urgently had to speak to was out of office. Bloody typical.

The next morning I got a phone call....offering me a brand new five bedroomed house.
I didn't really take it in at first, but the woman on the phone arranged to come and visit the same day.

The first thing I asked her was would I be fighting for this house along with others. On the bidding system six people are chosen to view then a final decision is made to who gets the house. She said no, I was the only person and if I accepted the house on viewing then it was mine.

The house has not been finished being built yet. I went to look at it and it had no windows, floors or doors, but the main structure was there and  I have the plans for the finished house. I can't even begin to explain how excited I am. I've been on Google Street map and 'walked' the area over and over, the routes to the schools, the shops, the church. I've studied the bus time tables and even checked to see if we will be able to keep our Virgin tv and broadband.

Deep down, I think my mum had something to do with this.

There is one problem hanging over it all right now, it's complicated to explain but I'll try briefly. We can't move unless our rent account is clear and currently it's showing an overpayment of housing benefit. This was news to me so I phoned the housing benefit and they said I didn't owe anything. I phoned the rent and they said I owed housing benefit, I told them that the housing benefit office said I didn't and they told me to call the housing benefit office and sort it out with them. So I called them back and they said there was nothing to sort out. I screamed, but not down the phone.

So I went to speak to someone in person but they couldn't work out what had happened but put an urgent request into head office to sort it. I was told it would be sorted in a few days but rang again and was told it could take 28 days. So I rang again (how many calls is that?) and demanded to speak to someone higher up so was put through to a manager. They have now put my query on Emergency which means a 48 hours response. I truly hope so because I have until next Friday to sort it out or I lose the house. I'm 100% sure that it is a mistake and have all the documentation to prove it, but if it isn't sorted then my only option to not lose my house is to pay £685 (which I haven't got) to pay a bill that I don't owe. I don't even know who I would pay it too.

There's always something. I'm trying to stay positive that it will be sorted.
please keep your fingers crossed for me.

Oh, and I still don't know why I'm suspended from bidding...not that I want any other house now.

Wednesday, 19 June 2013

Happy times in June

This is a post for my blessings jar.
Last week we had a wonderful week in Center Parcs. The place was absolutely beautiful, our lodge where we stayed was lovely and the views of the forest I woke up to every morning will stay with me always. The little ones had a great time, lots of fun and they didn't really play up that much. Well, apart from Joe who is currently taking his terrible twos in full swing *sigh*
The weather wasn't so good but to be honest we didn't really notice. Anyway, the trees are great shelter in the rain :)
The spa day was most definitely a blessing. I absolutely loved every moment. And after three hours of sauna's and spa pools I went for a relaxing massage and facial. It was good! (and even better knowing that I hadn't paid for any of it~)

We spent the holiday with some lovely friends. We had planned activities that we did together and chose to have a BBQ back at the lodge together the one evening. Otherwise we didn't feel obliged to spend every second together and it felt comfortable. Apart from the Spa my second favourite event was the BBQ, we got a little drunk and had fun. (of course someone had to have a little rant and spoil things a little but by then I just didn't care thanks to the Jager bombs)

Since coming home things have not been so good, but this holiday will forever be a blessing and a wonderful memory.

Friday, 7 June 2013

Trying to be in the 2%

When I went to the blog summit last month the day was ended with an inspirational speaker who talked about happiness and how most people go the wrong way about achieving it. He believes that happiness is a choice you make, it doesn't come from achieving goals or things that you want, but it's something that comes from inside of  you. Only 2 % of the population currently seem to achieve this, the rest are known as mood hoovers.
I am usually a mood hoover. I know I can't help it, I get really depressed at times and it's hard to fight it off. But when I'm not ill I try to be happy, I always thought that I was happiest when I had things to look forward to or when things were going right (not very often then!) but this year I've been finding a lot of happiness from within and it's helped to ward off the demons.

It's sometimes difficult but it really is a state of mind. I get up and choose to be happy and most days I can achieve that, and I don't let any mood hoovers get me down. And believe me, I have two huge mood hoovers in my life who it seems hell bent on bringing me down. So I don't bite on their vitriol and respond to them with kindness and understanding. Sometimes it diffuses things and we can continue happily. Sometimes it  aggravates them and they call me passive aggressive. I know I do have passive aggressive tendencies but sometimes I'm not being nice to make them angry, I'm doing it because I want them to be nice back. I guess you just can't win with some people.

I wish things could be different. I wish I could turn the clock back and find the happiness that they have lost but sadly it just doesn't seem possible. I've tried to pass on advice to help them achieve peace in themselves but it doesn't work. It doesn't matter what I do or say it just makes them angrier.

One thing I have stopped (almost completely) is fighting back. I'm not going to argue, they can be right if it makes them happy. I know in my heart what is true. Sometimes it gets me down a little too much and I break, but not very often.

I get told that I  take too much shit. I get told that I should put them in their place. But only I understand that fighting back just isn't working so what's the point. It's a happier world to live in when at least one person can be calm and happy despite what goes on around them.

I still dream of that little place in the middle of nowhere where I can hide with my little ones. Where I can escape and do the things I want to do without causing a fight (listen to music, let the kids make a noise/mess, sing, watch tv) it's such a lovely dream, but even if it were to come true I'd worry about those I'd left behind.